113 Responses to “What is a Pineal Gland Tumor?”

  1. Jane Carter says:

    Hi Anita,
    A bit more good news about the daughter of my brother’s sister-in-law. This rare form of Spina Bifida has finally ruled out the Pineal gland.
    She is doing better, headaches less, dizzyness less, she now drives fine and has no fainting spells.
    The doctors still have her on a wait and watch situation, as this is not 100% diagnosis.

    And her mom who had her Pineal gland out, is doing extremely well, way way better than they ever thought, as it was diagnosed so late. She is re-married and happy as ever, finally.

    And Im taking another WordPress class, but miss you greatly, as you sure were the best teacher. Email me if you want to see my latest attempt and the pictures of our storm.
    Jane

  2. Lisa says:

    I was so glad to find you. I’ve had a very hard time finding someone who has had a pineal tumor and had their pineal gland removed. I had surgery on March 6 2011, followed by radiation to remove the last 7% they couldn’t get. I was declared tumor free and recovered quickly. Now I’m having trouble sleeping and I am tired all the time. I have no energy and I struggle with sadness. I would really like to talk to some one that has been through the same thing and has no pineal gland and find out how it effects your life.
    Thank you for your time. Lisa

    • Anita says:

      Hi Lisa,

      As people always ask me, have you tried melatonin for the sleep? I actually haven’t but your pineal gland regulates your circadian rhythm, so things can be pretty whacked out. My regular day seems to be 30 hours (awake that is) and when I try sleeping sooner I just can’t. I’ve suffered from depression forever so I can’t say that part is related to my pineal gland, but it could be I suppose. There have been some great comments in here from folks and we all seem to have the same types of issues, but I’m not sure we are finding many answers. Still, it’s nice to know you aren’t alone at least. I’m glad you had a good outcome, they weren’t able to get all my tumor. I’m not worrying about it though, it’s a lot smaller than it was.

      Anita
      Anita recently posted..Argh! (this is a rant)My Profile

  3. […] Edited to add links to a couple of my other blog posts What is a Pineal Gland Tumor? […]

  4. Ved Prakash says:

    My brother had 7cm pineal germinoma. After VP shunt surgery and Radiation and Chemotherapy, his tumor was completely removed. Doctor told him disease free. But after 1 year he again diagnosed eith cancer in abdominal His biopsy report is yet to come. His lungs and abdominal is full of pleural fluid. Doctor told that cancer cells seeds via Vp shunt. Do you know any case of this? please reply soon.

  5. Rochelle says:

    Hi…just checking in. I was diagnosed with a pineal gland tumor in April of 2009, and underwent Gamma Knife in December of that same year. I’ve just had the fifth consecutive MRI in as many years, and was told NO CHANGE, which is what we want. I was also told I do NOT have to have an MRI next year, and instead of every year now they will check it every two years. Big gift, that.

    Sending love and well-wishes to Sliloh for being here from the very beginning, and to all who come here seeking comfort and hope. Believe. xoxoxo

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